The idea of starting a blog to discuss my oldest son’s
dyspraxia has been brewing in my mind for quite a while, but I would always
talk myself out of it. Will people
really want to read what I have to say?
Will they think that I am merely looking for attention? As I dropped him off for high school
orientation today, I decided that the answers to those questions really don’t
matter. He is, in my mind, a success
story and if I can help one child, one family, by calling attention to an often
overlooked and misdiagnosed disorder, then putting my words down on a page will
be worth it! I asked my son how he felt about me blogging and
sharing his story and there was absolutely no hesitation when he gave his
blessing.
If you decide to join
me on this journey, WELCOME! He
received the diagnosis in kindergarten so, obviously, I can’t tell the entire
story in one blog. I guess the best
place to start is to define dyspraxia. Chances are, you have never heard the
term, but I can almost guarantee that you have seen or know someone who fits
the description. Dyspraxia is a
neurologically based disorder and affects a person’s ability to plan and carry
out motor tasks. It’s been called “Developmental
Coordination Disorder” or “Clumsy Child Syndrome” over the years. Much of the research has come out of the U.K.
and one of the best books I’ve read on the subject calls it “the hidden
handicap”. It affects approximately 1 in
10 and is much more common in boys. It
can make even the simplest of tasks extremely difficult and is worse on some
days than others. It often occurs with
other disorders like ADHD and Sensory Processing Disorder, which further
complicates things.
Some people think (trust me, I know this because I’ve been
told as much) such things should be private and not discussed, but when has
that ever helped anyone? I will never
regret the decision my husband and I made to be open and honest with our son
about his difficulties from the very beginning.
I won’t lie, it’s tough. He is
such a smart kid and it’s hard to watch him struggle with tasks that most of us
complete with little effort. One of his
teachers told me that she cannot imagine how intelligent he really is to
overcome what he does on a daily basis and still make such good grades. I certainly don’t have all the answers and I
can’t take credit for his success. Much
of that is thanks to wonderful therapists and teachers. The one thing I wish to offer as I share his
story…hope.
Heather, I think it's great that you're doing this. I will be following along on your journey. You are a terrific mom and person. So many will benefit from this blog.
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